The CFS Advisory Committee

The CFS Advisory Committee — If we always do what we’ve always done, we will get what we’ve always gotten

By John Herd
September 28, 2010

The CFS Advisory Committee (CFSAC) is impotent.

For the better part of two decades I’ve consistently voiced this sentiment and will do so again.

People have said we must attend the meetings and submit our testimonies, if for no other reason than to show we are watching and that we care. I too have attended such meetings and submitted testimonies; it is an exercise in futility.

The CFSAC is merely an advisory committee giving advice to a health department that doesn’t want the advice. The health department has continually had little if any intention of acting on outsider advice. It certainly has not corrected all the negligent shortcomings in how it has addressed [and not addressed] ME/CFS matters.

All the testimonies, the committee’s recommendations and the messages carried in the committee transcripts are ignored. They are relegated to reside lost in file cabinets and HTMLed web pages while the DHHS agencies have continued to do what they want.

If anything all we get for it is bureaucratic double speak lip service. The health department bureaucrats talk so much out of both sides of their mouths that it’s amazing they’re not left looking as if they have cleft pallets.

Given such an environment a mere advisory committee has far less than no teeth — it’s impotent, shooting blanks.

How much is too much? For two decades lots of us have committed our time, energy and hopes to the work of the CFSCC/CFSAC. For what? Lips service?

It’s time for the CFS community and CFSAC elected members to protest in ways that will show the DHHS for what it is.

It’s time to give the impotent committee balls.

© John Herd, ’10


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