Grass roots advocates often feel profoundly inadequate because they can’t do more for those who reach out for help. There aren’t enough medical, financial, educational, or support resources available. What resource are available are woefully inadequate in meeting the scope of people’s needs.
So many inadequacies — I blame the government for that. I blame the much of the medical sector who for decades have been scientifically myopic about the illness. And I blame some amongst us who have fallen short on trusted effective advocacy representation over the past decades.
After having many phone conversations with people in need, or after sending off email replies to such people, the weight of feeling inadequate weighs on my shoulders — I want to be able to do so much more to levitate people out of their distress.
In an effort to express such sentiments I created this graphic.
This is a weight that the CFS advocate endures, always carries.
It may weigh heavy on the shoulders, but so too is it and the collected insights gathered along the way what drives the true CFS advocate to speak out on other’s behalf — it is the heart and soul of true advocacy.
True advocacy, being a true advocate, has nothing to do with individual’s or organization’s personal gains. It has nothing to do with empire building. It is all about helping, freeing, all the invisible CFS hostages.
I applaud all the advocates who have and will carry the true heart and soul CFS messages to the public and the halls of government. I applaud all the advocates who have tried to help others one person at a time.